AS the parent and sole carer for her adult disabled son, Wendy Farrelly lives with the worry of what will happen to him when she can no longer care for him.
The news the state and federal governments have come to an agreement to jointly fund a roll-out of the National Disability Insurance Scheme (NDIS) by July 2018 she says is heartening for people with a disability, their carers and their families.
“It will bring some peace of mind to people like me but also allow people with some disabilities to have a voice,” she said.
Ms Farrelly said when he son was three months old issues over his development became obvious.
“He is still undiagnosed but he can’t speak, he has a severe scoliosis and his spine is twisted,” she said.
“Yet he is one of the people who is able to make the most of life.”
Her son, she says, has required 24-hour, seven-day-a-week care for 26 years.
Ms Farrelly has been at the forefront of advocating to get the best outcomes for her son.
Occasionally she says she welcomes the services of Carewest in Orange for respite and says she feels strongly that governments have for so long failed to provide sufficient support for people with a disability.
“If a politician had a disabled child they would see what it is truly like,” she said.
Under the current system Ms Farrelly said disabled people were left without a say in their choices.
“They are all individual with different needs, different likes and dislikes and different desires,” she said.
“People get up in arms about the way cattle are treated overseas, but if they saw the conditions in the community that some people with disabilities have to endure they would be up in arms about this too.”