Sharni Drew was just 26 weeks pregnant when she gave birth to baby Jayce.
Diagnosed with pre-eclampsia three weeks prior, doctors at Nepean Hospital in Penrith thought the Orange mum would be forced to have an emergency C-section.
But Jayce hung in there and on April 30 he was born, weighing just one pound and five ounces, which is just under 600 grams.
He also came out crying and breathing by himself.
"That was a miracle on its own," Mrs Drew said.
But just 10 minutes later, Jayce was put onto a ventilator and has been up and down in the month since.
"He was on a ventilator and then taken off and put on CPAP," the mum added.
"He went quite well for the first two weeks but then had a downfall and stopped breathing so they had to put him back on the ventilator and stopped his feeding."
But on Sunday, Jayce was transferred to the Royal Women's Hospital in Randwick because his stomach had become so big that it was now larger than his head.
"They thought he had an infection in his stomach and he has quite a big hernia at the moment as well," Mrs Drew said.
"He's just been extubated on Wednesday and is doing quite well at the moment but it's going to be a long journey."
Having been in Sydney for a month already, she believes they will still be there for at least another two months, if Jayce progresses well.
"If he has another downfall it will be longer," she said.
"It's upsetting and it's quite stressful. My mum has come down from Queensland and [husband] Matt had to go back to work, so it's quite hard being away from him as well.
"He is only able to come back on the weekends to see Jayce, so it's hard on him being home alone as well."
To try and help the family, Matt's mother Tanya set up a GoFundMe page to try and help them financially.
"Sharni and Matt have used up all saved leave from work in this medical emergency," the grandmother said.
"So I'm asking if anyone can help donate big or small will be extremely appreciated. Please keep baby Jayce in yours prayers."
The fundraising page can be found by searching 'Help Sharni, Matt and Baby Jayce' on GoFundme.com.
But in the meantime, Jayce's mum knows it will be an uphill battle, but one they are prepared for.
"One day he'll be doing amazing and the next he'll go back down again," Mrs Drew said.
"It's a day to day fight and he is quite a fighter."
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