The Myeloma Australia - Orange Support Group will host a meeting for people with multiple myeloma and their carers at on Thursday.
The support group will meet from 4pm to 6pm at the Giyalang Ganya Community Services Centre in Lords Place, next to the council car park.
Multiple myeloma is a type of bone marrow cancer arising from plasma cells, which are normally found in the bone marrow. It is called multiple because it also often affects more than one place in the body.
The region's Myeloma Australia ambassador Kerri McEvoy said sometimes patients were not well enough to attend, but their carers or family members could go along and find out what support is available.
The November gathering will feature a social worker, who will talk through living with myeloma, and the assistance available.
This includes understanding and accessing legal information and financial assistance including grants to support transport and living expenses, as well as how to access other support services.
The previous meeting, held in September had 12 attendees, but with about 120 patients seen by specialists in the Orange area, the group is reaching out to encourage others to connect.
Currently there is no cure for myeloma, but with treatment it can often be controlled for many years.
Treatment traditionally involves a combination of chemotherapy drugs, steroids and high-dose therapy, as well as stem cell transplants and radiation treatment so there can be unpleasant and intense side effects.
However, Ms McEvoy said one benefit of the support group was that "you can pick up the phone and say 'today I'm feeling blah' and talk to someone who understands. You can talk to others about how you feel".
Orange resident Kathy McRae agreed with the benefit of talking to someone who understands and her daughter Joanne McRae said it was also helpful for carers to better understand myeloma and know what assistance is available.
"It is good to know where to get reliable information, know what's normal for medication or chemo side effects, and learn how I can best support Mum," she said.
To RSVP email NSW Myeloma support nurse Geo Sobrio at firstname.lastname@example.org or phone 0426 404 766.
For more information visit myeloma.org.au/. If anyone needs more urgent assistance contact the Myeloma Support Line on 1800 693 566.
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